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Some Snippets

posted 21 Apr 2014, 07:16 by Alan B.
Here are some snippets you might like to note:

* The Moray Branch of the MS Society is attracting more volunteers and has a new email address - moray@mssociety.org.uk Please update your records.

* MS Awareness Week this year runs from 28th April to 4th May 2014. The Moray MS Support Group will hold a fundraising Cake Break at the Moray Resource Centre on Friday 30th May 2014. This follows a successful event last year which raised more than £200. All are welcome - especially cake bakers!
* The Scottish Medicines Consortium (SMC) has announced that a new drug - Tecfidera (dimethyl fumarate) - should be available for people with relapse/remitting MS in Scotland. It was previously turned down by NICE in England and Wales. The pill is taken twice a day and is proven to cut  relapse  rates and may also delay disability progression. Approval means that Scotland’s health boards are expected to make Tecfidera available on the NHS for eligible patients who wish to try it. We will wait to see what decision NHS Grampian reach but Gillian, MS Specialist Nurse for Moray, has already attended the launch for Tecfidera and is becoming briefed in its use.  
This follows approval of Aubagio (Teriflunamide) another oral treatment for relapse/remitting MS. 
NICE in England and Wales have also approved another drug - Lemtrada (Alemtuzumab). The Scottish decision is expected soon. So there is lot happening with disease modifying medication and you should talk to your Neurologist or the MS Specialist Nurse to discuss this.
* Those of you with an interest in campaigning, especially around welfare reform, will note that the MS Society Campaigns team are holding a Voices for Change session in Inverness at the MS Therapy Centre on 3rd July from 4.30 - 6.30. A booking form is on the MS Society website here  www.mssociety.org.uk/voices-inverness 
* After the successful taster session of the Mindfulness approach to stress reduction, I'm working with Keith Park from the MS Societyand Momie Cain, Mindfulness trainer, to see if we can develop a training programme specifically for MSers in Moray. I'll post updates here as things develop.