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MS Research project

posted 5 Jun 2013, 06:26 by Alan B.
I have received the following letter. If anyone is interested you can get in touch with the researchers. I have a copy of the Patient Letter they refer to so Contact Us if you'd like me to send you a copy.

Dear Alan,

fastforward research have been commissioned by a pharmaceutical company to conduct independent research to better understand the MS patient experience, including views on support services and treatment options.

As part of this project we are recruiting MS patients who have been diagnosed with MS within the last 12 months and are currently on DMD treatment (Copaxone, Avonex, Betaferon or Rebif).

We would be extremely grateful if you could mention our project to any MS patients you can identify & who you think meet the following criteria:

·         All must be comfortable discussing their experiences with other people who have MS

·         All must have access to the internet at home

·         All must have been diagnosed within the last 0-1 years

·         All must be on disease modifying drugs (DMDs)

The project will involve taking part in an online chat forum that provides opportunity to discuss with other MS patients from across the UK & Republic of Ireland and also allows participants to have a private space to comment on experiences or feelings. It will be open for 2 weeks (with 1 week break between each week). 

As a thank you for taking part in the research we can offer each patient £40 or they can choose to donate to a charity of their choice.

As a thank you for your time and help, we would like to offer £40 for each one of your patients who goes on to take part in the marketing research project.

Please mention our project to any patients meeting the above criteria who you think may be interested in taking part.  Please give them a copy of the attached patient letter & ask them to contact the 4discussion team:

Please contact:           Tom/Janine

Telephone:                  01625 543712 or 543700

Email:                          4discussion@4discussion.info

Please be assured we keep all patient details confidential and they are not revealed to anyone who may view the discussions.

The discussions will be confidential & all patients will be anonymous, however we will be monitoring chats and uploads, additionally our client may review anonymous online materials/chat. All information will be kept confidential in accordance with the ABPI Code of Practice, which governs the activities of pharmaceutical companies.

fastforward research are an independent marketing research consultancy and we are members of the UK professional market research bodies: MRS, BHBIA, EphMrA & ESOMAR, abiding by their Codes of Conduct and data protection law.

If you would like to discuss anything further yourself or have any questions please do contact us.


With kind regards,
Tom

 

Tom Hibbert

Project Co-ordinator

 

4discussion

Tel: 44 (0) 1625 543713

Fax: 44 (0) 1625 521432

Email: 4discussion@4discussion.info

www.4discussion.info

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